On May 11, 2018, the U.S. Department of Health & Human Services (DHHS) held a “Stakeholder Listening Session” in the HHS Hubert H. Humphrey Building Auditorium, 200 Independence Ave, SW, Washington, DC 20201 to prepare for the SEVENTY-FIRST WORLD HEALTH ASSEMBLY A71/1 Geneva, Switzerland 21–26 May 2018 The provisional agenda for the WHA is here: http://apps.who.int/gb/ebwha/pdf_files/WHA71/A71_1-en.pdf The meeting went from 3pm to about 4pm and about 45 participants had 2 minutes for each intervention on the many agenda item. Most speakers represented industries such as the manufacturers or the sugar related good industries. UACT registered to take the floor for the following item: 11.7 PreparationRead More →

On December 8, 2017, UACT submitted a letter to the US, Canadian, and Mexican representatives of the NAFTA re-negotiations. Please find below the full text of the letter. A PDF version is available here. Union for Affordable Cancer Treatment 1621 Connecticut Avenue NW Suite 500 Washington, DC 20009 Tel.: 202.332.2670 www.uact.org December 8, 2017 Dear NAFTA Delegates, The Union for Affordable Cancer Treatment (UACT), created in 2014, is a union of people affected by cancer, their family members and friends, people who take care of people with cancer, health care professionals and cancer researchers committed to increasing access to effective cancer treatment and care. WeRead More →

Today, UACT submitted letters to the CEOs of three major pharmaceutical companies currently developing chimeric antigen receptor T-cell (CAR T) technologies.  UACT asked the leaders of Novartis, Gilead Sciences, and Juno Therapeutics to address questions regarding research and development (R&D) costs, federal-funding received, potential public health impact, and ensuring equitable and affordable access to CAR T treatments in the US and around the world. The first CAR T treatment was approved by the FDA yesterday, a treatment for leukemia in children and young adults produced by Novartis, and was quickly announced to carry a $475,000 price tag. As this new area of cancer-treating technologies emerges,Read More →

Time for cancer patients to come before corporate profits by Manon Ress, co founder and acting director of UACT First posted by MOHGA KAMAL-YANNI ON JUN 15TH, 2017 IN ACCESS TO MEDICINES, INEQUALITY, NON COMMUNICABLE DISEASES, UNIVERSAL HEALTH COVERAGE http://www.globalhealthcheck.org/?p=1973 On 26th Of May, the World Health Assembly adopted the long debated Resolution on Cancer Prevention and Control. This is an important step towards supporting countries to address this disease in order to achieve Universal Health Coverage (UHC). Cancers are a leading cause of morbidity and mortality worldwide, with approximately 14 million new cases and 8.2 million cancer-related deaths in 2012, 70% of which occurredRead More →

On May 31, 2017, World Health Assembly adopted a new resolution on the prevention and control of cancer.   UACT earlier wrote about the negotiations on the resolution here and here.  IP-Watch published a story about the resolution here.  A not quite final version of the text is here. The following are statements from four members of UACT:   Dr. Manon Ress, Founder and Acting Director, Union for Affordable Cancer Treatment (UACT) UACT was among 29 civil society organizations and 33 health professionals, activists, and economists — including Nobel Prize laureate Joseph Stiglitz — asking delegates to WHA to support a feasibility study on theRead More →